What is the rarest form of alopecia?

Author: Prof. Geoffrey Trantow DVM  |  Last update: Monday, May 22, 2023

Alopecia universalis
This is the most advanced (and rarest) form of alopecia areata. Alopecia universalis causes all of the hair on your body to fall out—including your eyebrows and eyelashes.

What is the most severe form of alopecia?

In its worst form, alopecia universalis causes you to lose all body hair. This includes eyebrows, eyelashes, arms, legs, underarms, pubic, and chest and back hair for men. Rarely, people who have alopecia may feel burning or itching in the areas where they once had hair.

What are the 5 types of alopecia?

There are up to 6 recognised types of alopecia, which are: Androgenetic, Areata, Fibrosing, Diffuse, Scarring, and Universal. Androgenetic, also called male-pattern baldness, is the most common.

What are the 3 types of alopecia?

Most people know alopecia to be a form of hair loss. However, what they don't always know is that there are three main types of the condition – alopecia areata, alopecia totalis and alopecia universalis.

How rare is alopecia?

Alopecia areata affects 1 in every 500 to 1,000 people in the United States. It is one of many recognized forms of alopecia; alopecia areata is the second most common form after androgenetic alopecia (male-pattern baldness in men and female-pattern baldness in women).

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Which race suffers from alopecia?

Alopecia areata is more common among African Americans but less common among Asians, compared with whites, according to a new study involving registry data for more than 11,000 individuals.

Is alopecia very serious?

Alopecia areata isn't usually a serious medical condition, but it can cause a lot of anxiety and sadness. Support groups are out there to help you deal with the psychological effects of the condition. If you lose all your hair, it could grow back.

Is alopecia a disability?

Alopecia in its own right is not classed as a disability in legal or employment terms. For something to qualify as a disability, it means it has to have a substantial and adverse effect on your ability to carry out normal day to day activities. Alopecia itself does not limit abilities but the mental health impact can.

Can alopecia be fatal?

Alopecia areata is not life-threatening and does not cause physical pain. However, the psychosocial effects of hair loss can be devastating. In addition, patients may experience symptoms related to hair loss, such as increased eye or nasal irritation after loss of eyelash or nasal hair.

What are the 7 types of alopecia?

Main forms of alopecia areata
  • Alopecia areata (patchy) ...
  • Persistent patchy alopecia areata. ...
  • Alopecia totalis. ...
  • Alopecia universalis. ...
  • Diffuse alopecia areata. ...
  • Ophiasis alopecia.

Does alopecia worsen with age?

Alopecia areata can occur at any age but about half of cases come on in childhood and 80% of cases come on before the age of 40 years. Men and women are equally affected. The condition tends to be milder if it comes on at an older age.

Does alopecia last a lifetime?

In alopecia areata, the body's immune system mistakenly attacks the hair follicles for reasons that are not clear. Fortunately, the follicles retain their ability to regrow hair, and the hair loss is not permanent in most cases.

How long does alopecia usually last?

How Long does Hair Loss Last? In half of patients with alopecia areata, individual episodes of hair loss last less than one year, and hair grows back without treatment. These patients may experience recurrent episodes of hair loss that spontaneously regrow or respond quickly to treatments.

Do any celebrities have alopecia?

Jada Pinkett Smith is one of the most famous celebrities with alopecia. She was diagnosed with alopecia areata in 2018, and has been open about it on social media since then. Jada has used steroid treatment and covered her hair with wigs and headscarves to disguise her condition.

What triggers alopecia?

Hair loss (alopecia) can affect just your scalp or your entire body, and it can be temporary or permanent. It can be the result of heredity, hormonal changes, medical conditions or a normal part of aging. Anyone can lose hair on their head, but it's more common in men.

What percent of the world has alopecia?

Alopecia areata affects nearly 2% of the general population at some point during their lifetime.

What is it like living with alopecia?

These include feelings of grief, anxiety, loss, fear, embarrassment, loneliness and anger. Feeling frustrated? People who have alopecia areata and their family members often experience a variety of feelings and frustrations living with this disease.

Does alopecia shorten your life expectancy?

“There are some that still consider it a cosmetic problem. It's not.” It's this stigma, along with the fact that alopecia doesn't actually shorten a patient's life span, that's kept it low on the list of priority diseases for research.

Does alopecia hurt?

If you have alopecia areata, it generally doesn't cause pain or other symptoms. However, some people say that right before they lose their hair, they feel tingling, itching, or burning on the skin where the hair will fall out.

Does alopecia affect the brain?

Androgenic alopecia (AGA) is associated with significant cardiovascular risk factors that also have a negative impact on brain aging.

Can you dye your hair if you have alopecia?

The short answer is yes. The part of the hair that is coloured in the dyeing process is the hair shaft. Dye doesn't reach the hair follicles which is the part of the hair we are most concerned with when looking at alopecia.

Can I get a disability check for alopecia?

The condition is not covered by any legislation designed to combat disability discrimination such as the Americans with Disabilities Act in the U.S. or the Equality Act in the U.K.

What do you say to someone with alopecia?

My Tips: When your friend has alopecia areata
  • Listen to their story.
  • Validate what they feel and what they've gone through.
  • Do your research to become more knowledgeable and comfortable talking about it.
  • Ask sincere questions.
  • Know when to respect their boundaries.
  • Challenge them out of complacency in their journey.

What age does alopecia start?

When does alopecia areata begin? You can get alopecia areata at any age; however, most people develop it by 30 years of age. For many, the disease begins during childhood or the teenage years.

Can alopecia be cancerous?

Alopecia areata (AA) is an organ‐specific autoimmune disorder. Defective immune system related disorders are prone to increase the risk of cancer formation. However, the association among AA and variety of cancer types had never been studied.

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